About SickKids

Dedicated exclusively to children and their families, The Hospital for Sick Children (SickKids) is one of the largest and most respected paediatric healthcare centres in the world.  As innovators in child health, we lead and partner to improve the health of children through the integration of healthcare, leading-edge research and education.  Our reputation would not have been built - nor could it be maintained - without the skills, knowledge and experience of the extraordinary people who come to work here every day.  SickKids is committed to ongoing learning and development, and features a caring and supportive work environment that combines exceptionally high standards of practice.

When you join SickKids, you become part of our community. We share a commitment and determination to fulfill our vision of Healthier Children. A Better World.

Don't miss out on the opportunity to work alongside the world's best in paediatric healthcare.

Position Description

Clinical Research Project Coordinator (part-time)

HOPE-Can: Hyperoxaluria Outcome and Patient Evaluation Canada

Division of Nephrology, The Hospital for Sick Children, Toronto

Position summary

HOPE-Can is the Canadian national patient registry for primary hyperoxaluria, hosted at SickKids and funded by the Canadian Drug Agency. It collects longitudinal clinical, biochemical and outcome data using a data dictionary harmonised with the OXALEurope and Mayo Clinic registries. We seek a part-time Clinical Research Coordinator to take day-to-day responsibility for the registry, including ethics submissions, patient recruitment, data collection and quality control, and liaison with participating centres across the country.

Key responsibilities

·        Prepare, submit and maintain Research Ethics Board (REB) protocols, amendments, renewals and related regulatory documentation, and support REB submissions at participating sites.

·        Identify, approach and consent eligible patients and families, in collaboration with the clinical team at SickKids and with collaborating centres.

·        Collect and enter clinical, laboratory and outcome data into the registry database (REDCap), including retrospective chart abstraction.

·        Perform ongoing quality control: source data verification, query resolution, consistency checks and documentation of data cleaning.

·        Maintain registry documentation: data dictionary, standard operating procedures, consent logs and enrolment tracking.

·        Act as the main point of contact for participating centres and support reporting to the funder and the steering committee.

·        Contribute to abstracts, manuscripts and presentations arising from registry data.

·        Setting up meeting agendas and organizing steering committee meetings, as well as assist with stakeholder engagement.

Qualifications

Required

·        Undergraduate degree in health sciences, life sciences or a related discipline.

·        Demonstrated experience preparing and managing REB (or IRB) submissions.

·        Direct experience working with patients and families in a clinical or research setting, including obtaining informed consent.

·        Experience with electronic data capture systems (REDCap preferred) and with clinical data entry and quality control.

·        Meticulous attention to detail, strong organizational skills, and the ability to work independently with limited supervision.

·        A commitment to understanding and aiding in the pursuit of equity, diversity and inclusion objectives

Preferred

·        Working knowledge of clinical medicine, laboratory data or nephrology. Formal medical training is an asset but is not required.

·        Prior experience with patient registries, rare disease research or multi-centre studies.

·        Working knowledge of French, given the national scope of the registry.

Employment Type & Terms:

·        Part-time temporary 1 year contract, approximately one to two days per week (0.2 to 0.4 FTE).

·        Highly flexible schedule with substantial scope for remote work, subject to occasional on-site presence at SickKids for patient-facing activities and chart access.

·        Salary commensurate with qualifications and experience.

·        Start date flexible; the position is available immediately.

 

 

#LI-DNI

Our Commitment to Diversity

SickKids is committed to championing equity, diversity and inclusion in all that we do, fostering an intentionally inclusive and culturally safe environment that reflects the diversity of the patients, families and communities we serve. Learn more about workplace inclusion.

Accessibility & Accommodation

If you require accommodation during the application process, please reach out to our aSKHR team.  SickKids can provide access and inclusion supports to eligible candidates to support their full engagement during the interview and selection process as well as to ensure candidates are able to perform their duties once successfully hired.  If you are invited for an interview and require accommodation, please let us know at the time of your invitation to interview. Information received related to access, inclusion or accommodation will be addressed confidentially.

How To Apply

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Every application is reviewed by a human recruiter and all hiring decisions are made by people. In some cases, AI-assisted tools are used to help review applications based on job-related qualifications.

All positions posted on the SickKids Hospital's Careers Site represent current vacancies, unless otherwise posted in the job description.